Dr. Laurie Mischley at Bastyr University in Washington State wants to know what Parkinson’s patients who are living well are doing to maintain their state of well being in spite of Parkinson’s. And she wants to hear from YOU!
This is your opportunity to participate in an on-line research study that wants to focus on wellness and not on sickness. Every six months for five years you will be asked to fill out an on-line questionnaire that will help researchers understand what people who are doing well are doing differently from those who are not. Results of this study could lead to new clinical trials and to new interventions and therapies for the treatment of Parkinson’s.
It is a unique study in that it will be looking for what works rather than for what isn’t working in the lives of people with Parkinson’s. People who do better than predicted with their disease are called “positive deviants”, a rather catchy way of thinking about what you are doing right, to help you live better. So, this is YOUR opportunity to help researchers find out what REALLY works for YOU!!!