Donor Bill Of Rights

Parkinson Research Foundation Subscribes to the

Donor Bill Of Rights as Developed by the APF

PHILANTHROPY is based on voluntary action for the common good. It is a tradition of giving and sharing that is primary to the quality of life. To ensure that philanthropy merits the respect and trust of the general public, and that donors and prospective donors can have full confidence in the non-for-profit organizations and causes they are asked to support, we declare that all donors have these rights:


To be informed of the organization’s mission, of the way the organization intends to use donated resources, and of its capacity to use donations effectively for their intended purposes.

The MISSION of the PARKINSON RESEARCH FOUNDATION is to find a cure for Parkinson’s disease through funding research while providing education and services that improve the quality of life now for Parkinson patients and their caregivers.

To fulfill this mission:


  • Funds Research
  • Publishes Scientific Findings
  • Advocates for Scientific Research and the Rights of People with Parkinson’s
  • Promotes Parkinson Awareness by means of Local and National Outreach & Special Events
  • Funds Educational Conferences with Renowned Expert Speakers in the Field
  • Provides Funding for PARKINSON PLACE, a 9,000 square foot site in Sarasota, Florida offering over 60 FREE programs a month as well as a first of its kind Outreach Program consisting of Video Podcasts for homebound local, national, and international Parkinson patients and caregivers.


To be informed of the identity of those serving on the organization’s governing board.

Please refer to Our Team page


To have access to the organization’s most recent financial statements.

Please refer to Financial page


To be assured their gifts will be used for the purposes for which they were given.

Gifts and Donations made to the Parkinson Research Foundation may be given for either general or specific purposes. Records of where your donation has been used will be happily made available upon request.


To receive appropriate acknowledgement and recognition.

Acknowledgement letters are provided to individuals and corporations, as well as approved Tributes to donors on our websites. Please let us know if you wish to be added to our online Tribute page. 


To be assured that information about their donations is handled with respect and with confidentiality to the extent provided by law.

Please refer to our Donor Privacy Policy


To expect that all relationships with individuals representing organizations of interest to the donor will be professional in nature.

All staff members sign a non-discrimination and etiquette agreement upon hiring. Parkinson Place has a ZERO tolerance policy when it comes to these matters.


To be informed whether those seeking donations are volunteers, employees of the organization or hired solicitors.

All Solicitations will include a statement of source so that contributors are made aware that they are being contacted by the Parkinson Research Foundation and which type of entity is being used to contact them.  Parkinson Research Foundation volunteers, employees, or hired solicitors (if any) will be required to provide donors with a phone number, mailing address, and email address where the donation can be made should they prefer to donate in ways other than by direct contact.


To have the opportunity for their names to be deleted from mailing lists that an organization may intend to share.

Parkinson Research Foundation will remove the name of any donor off any list that they request shared or not, simply contact us and request to be removed. Please refer to our Donor Privacy Policy


To feel free to ask questions when making a donation and to receive prompt, truthful and forthright answers.

No question will be refused.  If we don’t know the answer we will get it and return your call or letter promptly!


Association of Fundraising Professionals (AFP) Association for Healthcare Philanthropy (AHP) Council for Advancement and Support of Education (CASE) Giving Institute: Leading Consultants to Non-Profits